I apologize for not updating for the past few weeks. We've had a lot going on and I wanted to make sure I was in the right frame of mind before posting anything here.
Two weeks ago Allie was diagnosed with Single
Sutural Craniosynostosis of the
Metopic variety (
trigonocephaly) which means that the bones in her forehead fused too quickly. It has resulted in a vertical ridge on her forehead as well as a triangular shape to her head. We anticipated being told it was a minor cosmetic issue but the doctor instead suggested an intense cranial surgery to correct or prevent any problems with
inter cranial pressure. I was alone at the office, the doctor was a total jerk, I was caught off guard with the recommendation and felt bullied.
After taking some time to digest it all, doing some research, talking it out and praying, we are feeling much more comfortable with our options (including some possible non-surgical options!) and that we are in a better place to make an educated decision. We are currently obtaining a second opinion from some well-respected
craniofacial surgeons in Dallas and will make a final decision once we know more.
Regardless of which route we choose, I KNOW everything will be okay!